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Pediatric Cardiac Quality of Life Inventory

 

 Group of kids

 

Health-related quality of life (HRQOL) refers to the perception of the impact of a specific illness, medical therapy, or health services policy on a person’s ability to participate and find satisfaction in life’s physical, psychological, and social experiences.  The Pediatric Cardiac Quality of Life Inventory (PCQLI) is a disease-specific HRQOL instrument for children (8-12 years of age) and adolescents (13-18 years of age) with congenital or acquired heart disease (HD).  This inventory was designed to improve patient-centered medical treatment and outcome.  The PCQLI forms include both self-respondent and parent/proxy reporting. The PCQLI was developed at the Children's Hospital of Philadelphia and tested in a 19 center multi-national, multi-site validation study in the United States and England to test reliability, validity, generalizability, and responsiveness of the instrument.

The PCQLI is intended for use in both clinical and research settings.  Listed below are a few of the diagnostic, evaluative, and prognostic applications of this inventory:

Clinical

  • Clinical problems related to disease state, physical symptoms, and psychosocial status
  • Monitor changes over time in Quality of Life
  • Cross-sectional and prospective research studies utilizing Health Related Quality of Life as an outcome
  • Prioritizing problems based partially on patient and/or parent preference

Research

  • Research Cross-sectional and prospective studies of HRQOL
  • Evaluating differences in clinically important subpopulations
  • Determining treatment protocol efficacy
  • Evaluating differences in therapeutic regimens
  • Identify morbidity factors associated with Health Related Quality of Life

 

Bradley S. Marino, MD, MPP, MSCE
Cincinnati Children's Hospital Medical Center